One morning recently, I was doing something in the kitchen and making some noise. S was saying something to me and I asked her, "What?" I should have stopped what I was doing, but didn't and I still didn't hear what she said. So after her saying it 2 more times, I stopped what I was doing, got closer to her and asked again. She said loudly, "I LOVE YOU!" Oh my gosh, did you just say that? I have heard that so few times, and to think she would still say it after having to yell it for the 3rd time. Of course I swooped her up and gave her a huge hug. Another time just a few days later, I was buckling her in her car seat and she said, "I'm so glad you're here with me." Wow! These are gigantic breakthroughs for us.
The other day we were at a park and she played so nicely with a little boy her age. They played harmoniously for 3 hours!!! She does so well one on one, or even with a few kids. I've been told by her teacher that she has lost control in the classroom. This makes me really sad because it's not her nature to act out. She must be at sensory overload. The teacher is very low key, but the rest of the class is not. There is no time out, but I worry about self esteem. She may not be saying things to S, but S is clearly getting the message that she is naughty. It's just so hard to trust other people with your child. They can be great for them, but they can also so a lot of damage without you knowing what is going on. She has been sick this entire week, so I haven't discussed it with the teacher since she came home announcing she was naughty and bad. The teacher said she had a bad day, but that's all I know.
Since she is never sick, we don't ever need to give her medicine. Because of her oral sensitivities, the only time we've even had to give her fever reducer by mouth was when she first came home. It immediately gagged her and she threw it up. We had to wait and disguise it in a bottle of formula. A few days ago, we needed to give her some liquid ibuprofin. We gently put in into her mouth with a syringe and much to our surprise, she sawllowed it without a fight!!! For a kid who doesn't eat anything and still uses a bottle, this is an amazing leap for her. On the food note, she really wants to drink out of a juice box. She sees her friends doing it, and she tries so hard, but she just can't bring herself to do it. The good think is that she wants to eat and drink, so someday we know she will. She asks for food she doesn't eat. She asks for french fries, which she's eaten a few time. If she asks when I'm out, I've gotten them for her a few times. She will sometimes eat a few, but she mostly like to just hold the package. We have to start somewhere! That's all for now, we've been off the program for a week now because she's been too sick to do anything. Can't wait to get back to normal. I guess the good thing about illness is that it always strengthens our bond. She needed a chest x-ray yesterday and she did exactly what the lady told her to. Just 6 months ago, she would have been scared to death and not complied. Our progress is slow, but progress just the same. We will be around family for Thanksgiving and I'm stressing that there will be comments made. I'm trying to arm myself, but I'm usaually in such shock that I'm left speechless. Hopefully all the worry is for nothing.
Friday, November 19, 2010
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